National Organization Of Rare Disorders
DC · 3 filings, 2025
Lobbying spend · 2025
$70K
to shape legislation
About the organization
The National Organization for Rare Disorders (NORD) is a nonprofit organization based in Connecticut, aiming to provide support for individuals with rare diseases by advocating and funding research, education, and networking among service providers. It was founded in 1983 by Abbey Meyers, along with individuals and rare diseases leaders of rare disease support groups, and it is a 501(c)(3) tax exempt organization. via Wikipedia ↗
1Lobbies on
Its filings list: Health Issues · Medicare/Medicaid · Pharmacy
2Through these firms · 1
JAMES P. KEESE
3Bills moving in its lanes
No bill names this company outright; these are recent bills in the sectors it lobbies.
- S 5225A bill to amend the Elementary and Secondary Education Act of 1965 to include certain curriculum expenses a…
- S 5232A bill to amend the Public Health Service Act to authorize rural residency planning and development grant p…
- S 5237A bill to require the Director of the National Institute of Allergy and Infectious Diseases to award a comp…
- S 5242A bill to provide for digital communication of prescribing information for drugs (including biological prod…
- HR 10033Rules for self-driving cars and emergency crews